Dx Trisomy 21: Manuela Success Story
One little girl with an extra chromosome and no mother or father finds the family she deserves
Manuela is my adopted daughter, and I realized she had a problem at birth. The lawyer for the adoption process reported that she was born with a genetic problem and that we were free to retract the process.
I already felt Manuela was my daughter. Although I felt scared, it seemed to me that my daughter was the same, she just had an extra chromosome.
Genetic problems, developmental problems and cardiac problems
She also had a very high bilirubin and was hospitalized for 15 days. The doctors told us because of problems in utero that her development might be a problem.
Manuela was also born with 3 cardiological problems. At 5 months of age she had surgery to correct one of the problems and the two holes have been closing spontaneously, thank God.
I was very afraid because I didn ́t know what complications to expect with heart disease. I began to hear and read on the internet that many children did not survive or have a quality life.
“I knew we were going to be fine”
However, my love was immense, and I knew that God didn´t play dice, she was my daughter and I was her mother and together we were going to be fine.
I didn’t know where to research until a friend told me that the best way was The Institutes, so I went to the course What to Do About Your Brain-injured Child when Manuela was 3 months old. My life regained hope, I could understand the important things about her brain development.
I started working immediately when I arrived home and we have not stopped since.
Manuela had very little mobility, her muscular tone was very low and although the first year was very difficult and her development was slow, once she began to crawl then her physical development, health, intellectual growth and social growth began to improve significantly. By the time she was two years old she could walk well.
The course gave me the necessary information to start working on Manuela’s development in a precise and systematic way, it´s so clear and deep that it gives all the tools to implement the development program at home and obtain excellent results.
It gave me discipline, order, and daily motivation to develop an environment of intellectual, physiological, physical and social excellence in my home. It gave me the motivation and confidence to work for a goal – the development of the brain of my daughter, Manuela and that of my oldest daughter, Gabriela, who learned at our home school with this program. She also benefited from the program until she turned 9 years old and began school. By that time, she had a lot of information and the tools she needed to learn.
Although I am divorced and live alone with my two daughters, the program and The Institutes have been a huge support in raising my daughters. I am the Mother that is fulfilling her life purpose, thanks to the teaching of The Institutes.
It ́s normal to feel fear because we are in a standardized society and our injured children fall outside that standard, but that doesn ́t mean that they are not valuable human beings with the ability to develop their full potential and that as mothers we have the moral obligation to do everything possible to help them realize their potential.
Parents should go to the course because it is so complete and integrated. It is profound and provides information that is pertinent and gives us the confidence to invest our days and our lives in the future of our children.
The initial poor prognosis paralyzes parents with fear the support of the staff of The Institutes, their confidence in us, their encouragement to move forward and make us better parents, is only the way to awaken our consciences so we can live meaningful lives, with excellence at the service of others starting with our own family.
Manuela is now 4 years old, I am full of confidence in her future because she has benefited from all the effort that we put into her program every day. She loves the program and she enjoys it.
We can see how she is reaching her different development milestones. So, I am convinced that in the future she will reach her full potential and will be an excellent human being with the wonderful ability to love and help other brain- injured people to travel a path toward wellness successfully.
Investing our life in Manuela’s development will not only benefit Manuela in the future, I am sure that her older sister who has been a support in the Program and a fundamental part in motivating, encouraging and helping Manuela meet her daily goals, will be rewarded in being a more sensitive and considerate person, valuing the difference and making this a better world. All my gratitude to The Institutes, to the staff, to our staff advocate Susan Aisen and the legacy of Dr. Glenn Doman.